Archive for the ALS Experts Blog Category

Message and Voice Banking

Message and Voice Banking

Changes in your speech or loss of speech may occur with ALS. While there is no easy way to prepare for this prospect, Message Banking and Voice Banking are excellent options for preserving your unique sound and the identity it represents. Voice or Message Banking will enable […]

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Home Alone: Med-Alert Systems

Home Alone:  Med-Alert Systems

 Med-Alert Systems:  Important Features for People with ALS By: Amy Roman, MS, CCC-SLP   Many people with ALS  require some type of alerting system to gain the attention of caregivers.  In my last article, Alerting Systems For The Home, I described various systems to alert a caregiver within the house when you have […]

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5 Power Chair Features that are Necessary for PALS

5 Power Chair Features that are Necessary for PALS

By Melody Fung, O.T. R/L Occupational Therapist 5 Features Power Tilt and Recline: These two functions enable you to perform adjustment of back and hip angles independently. They provide pressure re-distribution and postural support to reduce the risk of skin breakdown. Tilt and recline are also essential […]

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Exercise: Helpful or Harmful in ALS?

Exercise:  Helpful or Harmful in ALS?

Exercise:  Helpful or Harmful in ALS?                                                                By: Robert G Miller MD, Neurologist, Director Sandy McDade RPT, Physical Therapist Melody Fong, Occupational Therapist Forbes Norris ALS Research and Treatment Center   We are all familiar with the many benefits of exercise including improved sleep, appetite, mood, […]

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Hydration: How Do I Get Enough Water?

Hydration: How Do I Get Enough Water?

By Cheryl Patterson, R.D. Registered Dietician.   How do I get enough water??  We hear this question frequently at The Forbes Norris ALS Clinic.  Hydration is important and can become challenging with swallowing difficulties.  Here are 5 guidelines to remember.   FIRST, It doesn’t have to be water! […]

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ABC News Features Many Ways pALS Communicate

ABC News Features Many Ways pALS Communicate

 Video: This ABC news spot features a glimpse at many communication methods from eye tracking on a computer based speech generating device (SGD) to the use of a head mounted laser pointer to target words and letters on a paper communication poster.  You will see people who use a BoogieBoard (a light weight LCD writing […]

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Dementia in ALS

Dementia in ALS

By: Susan Woolley, Ph.D. Neuropsychologist. For a minority of pALS, the disease affects thinking, not just muscles.  It is estimated that 15% of pALS experience dementia, which is called Frontotemporal Dementia (FTD).  Family members often notice this before the person with ALS.  Sometimes it causes dramatic changes […]

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Maintain Ability to Type, Swipe and Point

Maintain Ability to Type, Swipe and Point

By Amy Roman, CCC-SLP The husband of one of my patients invented this horizontal stylus about 12 years ago.  His wife could no longer isolate her index fingers for typing but she could still move her arms to type.  Her other fingers were getting in the way […]

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Clinical research: An Introduction

Clinical research: An Introduction

By Dallas Forshew, RN. Research described as “clinical” means that the research subjects are human beings.  Clinical trials try to translate information learned in laboratories, or in experiments done with animals, to learn how it applies to people. There are four types of clinical research: Observational studies […]

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Why all the swelling?

Why all the swelling?

By Bob Osborn, RN One of the most common problems that affects people with motor neuron diseases is called dependent edema. This is swelling of the hands and feet which gradually extends upwards into the arms and legs.  This is caused because veins depend on muscle movement […]

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